- •A gold standard patient reported outcome measure (PROM) for pediatric hand therapy practice is lacking.
- •While barriers to PROM utilization exist, pediatric hand therapists attribute value to using PROMs.
- •Design characteristics for a PROM applicable to a pediatric hand therapy population are elucidated.
Purchase one-time access:Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
One-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:Subscribe to Journal of Hand Therapy
Association AOT. Reimbursement changes: what's happening, how will it affect you, and what AOTA is doing about it? Accessed April 10, 2021, 2021. https://www.aota.org/Publications-News/otp/Archive/2019/Reimbursement-Changes.aspx.
- Advancing the value and quality of occupational therapy in health service delivery.Am J Occup Ther. 2015; 69: 1-7
- Hand therapy interventions, outcomes, and diagnoses evaluated over the last 10 years: a mapping review linking research to practice.J Hand Ther. 2019; 32: 1-9https://doi.org/10.1016/j.jht.2017.05.018
- Does hand therapy literature incorporate the holistic view of health and function promoted by the World Health Organization?.J Hand Ther. 2011; 24: 84-88
- How therapists specializing in hand therapy evaluate the ability of patients to participate in their daily lives: an exploratory study.J Hand Ther. 2015; 28: 261-268
- Outcome assessment in hand surgery and hand therapy: an update.J Hand Ther. 2001; 14: 63-67
- Embracing an occupational perspective: occupation-based interventions in hand therapy practice.Aust Occup Ther J. 2016; 63: 293-296
- The role of patient-reported outcome measures in value-based payment reform.Value Health. 2017; 20: 834-836
- Hand therapist use of patient report outcome (PRO) in practice: a survey study.. 2014; 27: 299-308
- Utilization of a wide Array of nonvalidated outcome scales in pediatric orthopaedic publications: can't we all measure the same thing?.J Pediatr Orthop. 2019; 39: e153-e158
- Use of patient-reported outcome measures in pediatric orthopaedic literature.J Pediatr Orthop. 2018; 38: 393-397
Weldring T, Smith S. Patient-reported outcomes (PROs) and patient-reported outcome measures (PROMS) Health Services Insights. 2013; 6: 61–68. doi:10.4137/HSI. S11093[PMC free article][PubMed][Cross Ref]. 2013 2013.
- Montreal accord on Patient-Reported Outcomes (PROs) use series - Paper 1: introduction.J Clin Epidemiol. Sep 2017; 89: 114-118https://doi.org/10.1016/j.jclinepi.2017.04.012
- Patient-reported outcome measures in routine pediatric clinical care: a systematic review.Front Pediatr. 2020; 8: 364
- A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting.BMC Health Serv Res. 2013; 13: 1-24
- Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management.J Clin Epidemiol. 2017; 89: 125-135https://doi.org/10.1016/j.jclinepi.2017.04.017
- Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.J Clin Oncol. 2004; 22: 714-724
- Documenting progress: hand therapy treatment shift from biomechanical to occupational adaptation.Am J Occup Ther. 2010; 64: 82-87
- Utility of the Canadian Occupational Performance Measure as an admission and outcome measure in interdisciplinary community-based geriatric rehabilitation.Scand J of Occup Ther. 2012; 19: 204-213
- Constraints of outcome measurement perceived by recreational therapists in physical medicine and rehabilitation.Annu Ther Recreation. 2002; 11: 1-10
- Exploring the implementation and use of outcome measurement in practice: a qualitative study.Int J Lang Commun Disord. 2008; 43: 110-125
- Implementing patient-reported outcome measures in outpatient rehabilitation settings: a systematic review of facilitators and barriers using the consolidated framework for implementation research.Arch Phys Med Rehabil. 2020; 101: 1796-1812
- Adoption of patient-reported outcome measures with youth with intellectual/developmental disabilities: Contextual influences and practice patterns.Child Care Health Dev. 2021; : 501-508
- Strengths and challenges in the use of interpretive description: reflections arising from a study of the moral experience of health professionals in humanitarian work.Qual Health Res. 2009; 19: 1284-1292
- Comparison of convenience sampling and purposive sampling.Am J Theor App Stat. 2016; 5: 1-4
The Pediatric Hand Study Group. Accessed April 11, 2021. https://pediatrichandstudygroup.org/.
- On becoming a qualitative researcher: the value of reflexivity.Qual Rep. 2007; 12: 82-101
- Research Design: Qualitative, Quantitative, and Mixed Methods Approaches.Sage publications, 2017
- Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness.Nurse Educ Today. 2004; 24: 105-112
HealthMeasures transforming how health is measured. Updated 2021. Accessed April 11, 2021. https://www.healthmeasures.net/.
- The Canadian occupational performance measure: an outcome measure for occupational therapy.Can J Occup Ther. 1990; 57: 82-87
- Development of an upper extremity outcome measure: the DASH (disabilities of the arm, shoulder, and head).Am J Ind Med. 1996; 29: 602-608
- The patient-specific functional scale: validity, reliability, and responsiveness in patients with upper extremity musculoskeletal problems.J Orthop Sports Phys Ther. 2012; 42: 56-65
- Barriers and benefits to the use of patient-reported outcome measures in routine clinical care: a qualitative study.Am J Med Qual. 2018; 33: 359-364
- The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research.BMJ Qual Saf. 2014; 23: 508-518
- The barriers and facilitators to routine outcome measurement by allied health professionals in practice: a systematic review.BMC Health Serv Res. 2012; 12: 1-9
- What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials.J Clin Oncol. 2014; 32: 1480-1510
- Benefits of and barriers to using patient-rated outcome measures in athletic training.J Athl Train. 2014; 49: 674-683
- Comparison of self-reports and parent proxy-reports of function and quality of life of children with below-the-elbow deficiency.JBJS. 2009; 91: 2852-2859
- Making the case for patient-reported outcome measures in big-data rehabilitation research: implications for optimizing patient-centered care.Arch Phys Med Rehabil. 2021; : 1-6
- A psychometric comparison of patient-reported outcome measures used in pediatric hand therapy.J Hand Ther. 2019; 33: 477-483
- Convergent validity of PODCI and PROMIS domains in congenital upper limb anomalies.J Hand Surg [Am]. 2019; https://doi.org/10.1016/j.jhsa.2019.08.003
Who is a Certified Hand Therapist (CHT)? Accessed April 11, 2021. https://www.htcc.org/consumer-information/the-cht-credential/who-is-a-cht.
JHT Read for Credit
Quiz: # 854
- # 1.The study design is
- a.prospective cohort
- d.case series
- # 2.Interviews were conducted with
- a.pediatric hand therapists
- b.pediatric patients
- c.the parents of pediatric patients
- d.social workers of pediatric patients
- # 3.Of the 10 interviewees
- a.2 were uncooperative during their interviews
- b.none of the 10 worked in clinics requiring the use of PROMs
- c.all 10 worked in clinics requiring the use of PROMs
- d.4 worked in clinics requiring the use of PROMs
- # 4.A commonly cited barrier to PROM utilization was
- a.institutional standards of care
- b.pressure from colleagues
- c.time constraints
- d.resistance by management
- # 5.A better more responsive PROM for the younger patient population is envisioned by the authors
Conflict of interest: All named authors hereby declare that they have no conflicts of interest to disclose.