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Full Length Article| Volume 35, ISSUE 4, P613-627, October 2022

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Measuring functional outcome in Dupuytren's disease: A systematic review of patient-reported outcome measures

Published:April 14, 2021DOI:https://doi.org/10.1016/j.jht.2021.04.010

      Highlights

      • The Disability of Arm, Shoulder and Hand (QuickDASH), Michigan Hand Questionnaire (MHQ), BriefMHQ, and URAM present adequate convergent validity.
      • The MHQ, BriefMHQ, Unité Rhumatologique des Affections de la Main (URAM), Southampton Dupuytren's Scoring Scheme (SDSS), Short Form-36 and the multi-attribute of the Health Utility Index -3 have good test-retest reliability.
      • The MHQ and BriefMHQ are highly responsive.
      • The results of this systematic review support the use of the MHQ and BriefMHQ in individuals with Dupuytren's Disease.

      Abstract

      Background

      Functional impairments related to Dupuytren's disease (DD) can be assessed using patient-reported outcome measures (PROMs). A systematic review was published in 2013 on outcome measures for assessing treatment in individuals with DD; however, several articles have since been published on this matter.

      Purpose

      To conduct a systematic review to analyze the quality and content of the evidence on the psychometric properties of PROMs used in individuals with DD.

      Study design

      Systematic review.

      Methods

      CINAHL, EBM reviews, Embase, Medline, and Web of Science were searched to identify studies evaluating the psychometric properties of PROMs used with individuals with DD. All studies retained were appraised by two independent assessors using two validated critical appraisal tools.

      Results

      Fifteen articles on the psychometric properties of 10 PROMs were included. Construct validity and responsiveness were the most studied. Eighty percent of the studies were of good to very good methodological quality according to MacDermid's Critical appraisal checklist for psychometric articles, whereas 67% of the studies comported risks of bias according to the COSMIN checklist. Of the 10 PROMs, three were specifically developed for DD but remain mostly under-studied for their psychometric properties (≤ 2 studies for the SDSS and DIF-CHUM). The QuickDASH, MHQ, BriefMHQ, and URAM present moderate to good convergent validity. Test-retest reliability was found to be good for the MHQ, briefMHQ, URAM, SDSS, SF-36, and the multi-attribute of the HUI-3. The MHQ and BriefMHQ are highly responsive.

      Conclusion

      There is a need for more psychometric studies on the PROMs used with individuals with DD. However, to date, the results included in this systematic review support that the MHQ and briefMHQ are the PROMs with the most acceptable psychometric properties.

      Keywords

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      JHT Read for Credit

      Quiz: # 921

      Record your answers on the Return Answer Form found on the tear-out coupon at the back of this issue or to complete online and use a credit card, go to JHTReadforCredit.com. There is only one best answer for each question.
      • # 1.
        The design of the study is
        • a.
          RCTs
        • b.
          systematic review
        • c.
          qualitative
        • d.
          prospective cohort
      • # 2.
        The investigators were interested in assessing the
        • a.
          cost of administering a variety of PROMs for Dupuytren's Disease
        • b.
          utilization rates of various PROMs for Dupuytren's Disease
        • c.
          functional outcomes of patients with Dupuytren's Disease
        • d.
          psychometric properties of available PROMs for Dupuytren's Disease
      • # 3.
        The author's used ___________ critical appraisal checklist in determining acceptable psychometric articles
        • a.
          Amadio's
        • b.
          Feehan's
        • c.
          MacDermid's
        • d.
          Mackin's
      • # 4.
        The final sample was _________ articles
        • a.
          10
        • b.
          15
        • c.
          20
        • d.
          25
      • # 5.
        While the MHQ and the briefMHQ are currently considered acceptable for clinical use, the authors feel additional PROMs are needed to better assess outcomes for DD
        • a.
          true
        • b.
          false
      When submitting to the HTCC for re-certification, please batch your JHT RFC certificates in groups of 3 or more to get full credit.