Highlights
- •An online version of the National Institute for Health and Care Excellence recommended SARAH (Strengthening And stretching for Rheumatoid Arthritis of the Hand) program was developed (mySARAH) that could be accessed directly by people with rheumatoid arthritis.
- •The study purpose was to evaluate the feasibility, acceptability, and clinical impact of mySARAH.
- •Of 11 enrolled, 6 participants completed all mySARAH sessions; 3 partially completed; two discontinued the program.
- •Participants improved in grip strength and hand function with no increase in pain. The majority reported improvement.
- •Most participants had positive experiences of mySARAH. Ways to maximize patient engagement with mySARAH such as support from health professionals were suggested.
Abstract
Introduction
The Strengthening And stretching for Rheumatoid Arthritis of the Hand (SARAH) program
is a tailored, 12-week hand and arm exercise program recommended in the National Institute
for Health and Care Excellence guidelines. It includes seven mobility exercises and
four strength exercises against resistance. An online version of the SARAH program
(mySARAH) has been developed to allow direct access for people with rheumatoid arthritis.
Purpose
The purpose of this study was to assess the feasibility, acceptability, and clinical
impact of mySARAH in people with rheumatoid arthritis.
Study Design
This is a mixed-method, proof-of-concept study.
Methods
mySARAH is a self-guided, online version of the SARAH program with six exercise training
and review sessions. Participants were observed as they worked through four of the
six online sessions. They were also asked to demonstrate the SARAH exercises. Participants
undertook two sessions independently at home.
At the baseline and 12 weeks, hand pain, hand function, and grip strength were measured.
At 12 weeks, feedback on mySARAH, and perceived recovery were also collected. Approximately
one month later, a telephone follow-up was conducted to explore participants' experiences
with mySARAH. Pain, hand function, and perceived recovery were also assessed.
Results
Eleven participants (males/females: 3/8) with a median (interquartile range) age of
63 (17) years took part. Six participants completed all mySARAH sessions. About 512
exercise and load-setting demonstrations were observed and 491 (96%) were performed
correctly. Improvements in grip strength and hand function were observed with no increase
in pain. Most of the participants reported improvement and provided positive feedback.
All participants perceived mySARAH as a useful resource. Features to improve the online
exercise diary such as recording and tracking exercise dose and face-to-face or remote
support by phone or Skype from health professionals were suggested to optimize user
engagement.
Conclusions
Initial evaluation of mySARAH indicates that mySARAH was feasible, acceptable, and
beneficial to participants. Further iteration and evaluation are needed before large-scale
implementation.
Keywords
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Journal of Hand TherapyAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Diagnosis and management of rheumatoid arthritis.Am Fam Physician. 2011; 84: 1245-1252
- The prevalence of rheumatoid arthritis in the United Kingdom: new estimates for a new century.Rheumatol Oxf. 2002; 41: 793-800
- Prevalence of hand symptoms, impairments and activity limitations in rheumatoid arthritis in relation to disease duration.J Rehabil Med. 2010; 42: 916-921
- Course of grip force impairment in patients with early rheumatoid arthritis over the first five years after diagnosis.Arthritis Care Res. 2018; 70: 491-498
- BSR guidelineson standards of care for persons with rheumatoid arthritis.Rheumatology. 2005; 44: 553-556
- Management of early rheumatoid arthritis. A National Clinical Guideline. SIGN Publication Number 48.(Available at:)
- Rheumatoid Arthritis: The Management of Rheumatoid Arthritis in Adults.NICE, London2009
- The effectiveness of hand exercises for persons with rheumatoid arthritis: a systematic review.J Hand Ther. 2004; 17: 174-180
- Strengthening and Stretching for Rheumatoid Arthritis of the Hand (SARAH)..A Randomised Controlled Trial and Economic Evaluation. 2015;
- Development and delivery of an exercise intervention for rheumatoid arthritis: strengthening and stretching for rheumatoid arthritis of the hand (SARAH) trial.Physiotherapy. 2012; 98: 121-130
- Exercises to improve function of the rheumatoid hand (SARAH): a randomised controlled trial.Lancet. 2015; 385: 421-429
- Rheumatoid Arthritis in Adults: Management NICE Guideline [NG100]. 2018 (Available at:)https://www.nice.org.uk/guidance/ng100Date accessed: February 7, 2020
- A web-based training resource for therapists to deliver an evidence-based exercise program for rheumatoid arthritis of the hand (iSARAH): design, development, and usability testing.J Med Internet Res. 2017; 19: e411
- An online hand exercise intervention for adults with rheumatoid arthritis (mySARAH): design, development, and usability testing.J Med Internet Res. 2018; 20: e10457
- Feedback-controlled robotics-assisted treadmill exercise to assess and influence aerobic capacity early after stroke: a proof-of-concept study.Disabil Rehabil Assist Technol. 2014; 9: 271-278
- Evaluation of exercise capacity after severe stroke using robotics-assisted treadmill exercise: a proof-of-concept study.Technol Health Care. 2013; 21: 157-166
- Group online mindfulness training: proof of concept.J Evid Based Complementary Altern Med. 2015; 20: 73-75
- Research Registry UIN.(Available at:)https://www.researchregistry.com/Date accessed: February 7, 2020
- Pain assessment.Eur Spine J. 2006; 15: S17-S24
- Michigan Hand Outcomes Questionnaire in rheumatoid arthritis patients: relationship with disease activity, quality of life, and handgrip strength.J Back Musculoskelet Rehabil. 2013; 26: 467-473
- A review of the measurement of grip strength in clinical and epidemiological studies: towards a standardised approach.Age Ageing. 2011; 40: 423-429
- Measurement Properties of the Hand Grip Strength Assessment: A Systematic Review With Meta-analysis..Arch Phys Med Rehabil. 2020; 101: 553-565https://doi.org/10.1016/j.apmr.2019.10.183
- IBM SPSS Statistics for Windows, Version 22.0. IBM Corp,
Armonk, NY2013 (Available at:)https://www.ibm.com/analytics/spss-statistics-softwareDate accessed: February 7, 2020
- NVivo Qualitative Data Analysis Software. QSR International Pty Ltd. Version 12,
2018 (Available at:)https://www.qsrinternational.com/nvivo/homeDate accessed: February 7, 2020
- Using thematic analysis in psychology.Qual Res Psychol. 2006; 3: 77-101
- Adherence in internet-based interventions.Patient Preference Adherence. 2008; 2: 57
- Adherence to a web-based physical activity intervention for patients with knee and/or hip osteoarthritis: a mixed method study.J Med Internet Res. 2013; 15: e223
- Engaging older people in an internet platform for cardiovascular risk self-management: a qualitative study among Dutch HATICE participants.BMJ Open. 2018; 8: e019683
- Chronic health conditions and internet behavioral interventions: a review of factors to enhance user engagement.Comput Inform Nurs Cin. 2011; 29: 81
- A longitudinal, qualitative study exploring sustained adherence to a hand exercise programme for rheumatoid arthritis evaluated in the SARAH trial.Disabil Rehabil. 2017; 39: 1856-1863
JHT Read for Credit
Quiz: # 872
Record your answers on the Return Answer Form found on the tear-out coupon at the back of this issue or to complete online and use a credit card, go to JHTReadforCredit.com. There is only one best answer for each question.
- # 1.The SARAH is endorsed by the NIH and is composed of
- a.12 exercises
- b.15 exercises
- c.4 strengthening and 7 mobility exercises
- d.5 ROM and 5 grip exercises
- a.
- # 2.mySARAH is composed of _______ sessions
- a.6 online
- b.10 online
- c.8 at home
- d.4 in clinic
- a.
- # 3.Outcome measures included
- a.grip strength
- b.pain
- c.function
- d.all of the above
- a.
- # 4.Data were
- a.all quantitative
- b.all qualitative
- c.a combination of qualitative and quantitative
- d.none of the above
- a.
- # 5.mySARAH was shown to be acceptable for universal application
- a.true
- b.false
- a.
When submitting to the HTCC for re-certification, please batch your JHT RFC certificates in groups of 3 or more to get full credit.
Article info
Publication history
Published online: October 25, 2020
Accepted:
October 19,
2020
Received in revised form:
September 17,
2020
Received:
February 10,
2020
Identification
Copyright
© 2020 Hanley & Belfus, an imprint of Elsevier Inc. All rights reserved.